Current Environment:


The goal of the Preterm Lung Patient Registry is to collect data on individuals with neonatal lung disease to better understand the illness and ultimately improve their care and survival. The Patient Registry was established in 2008 as a means to monitor important trends in the BPD population and to improve understanding, treatment, and survival.


Bronchopulmonary Disease

Recruitment Status


Detailed Description

The Preterm Lung Patient Registry is an observational study designed to identify epidemiologic and genetic factors associated with chronic lung disease in former preterm infants or those with lung disease in the neonatal period. The Patient Registry is used by both clinicians and researchers to better understand BPD and to improve care of individuals with BPD. It is used to assess phenotype and genotype information from former preterm infants with lung disease. Data in the Patient Registry will be analyzed and an regular report of BPD health trends will be created. Using this information, BPD clinicians can address quality improvement initiatives, and examine changing health care issues, including nutritional status, infection control, pulmonary treatment, metabolic and associated genetic variants. The Patient Registry will also play an important role in directing clinical care and in the design of clinical research studies. Researchers use the registry to help in investigating various aspects of neonatal lung diseases like BPD, including medications, diagnostic procedures, and eligibility for clinical trials.

Eligibility Criteria

Inclusion Criteria:

Former preterm infant


Intervention Type

Intervention Name


Patient Registry



Min Age


Max Age


Download Date

August 14, 2023

Principal Investigator

Lystra Hayden

Primary Contact Information

Lystra Hayden, MD, MMSc

For more information on this trial, visit


For more information and to contact the study team:

Preterm Lung Patient Registry NCT00951366 Lystra Hayden, MD, MMSc